Gut Punched: EP 53 Sleepy,??,  New Blood Test & 4 Suggestions for Caregivers

In Gutpunched: Alzheimer's and Caregivers, host Jeff Edwards dives deep into the world of caregiving, offering practical advice, emotional support, and a candid look at the challenges faced by those caring for loved ones with Alzheimer's. In this episode, Jeff revisits crucial caregiving principles and shares insights that can make a difference in navigating the tough journey of dementia care.

He starts by revisiting some of the fundamental rules caregivers need to follow:

1. Prioritize your own well-being — if you don't take care of yourself, who will take care of your loved one?

2. Recognize that you can't do it alone; support is essential. Connect with caregiving groups or your network of friends and family.

3. Create a practical list of people who’ve offered help and list tasks you can’t manage yourself due to the overwhelming nature of caregiving. Then, use that list to get things done efficiently, tackling the top priorities first.

4. A special tip: Create a "Help Signal" to ease your loved one’s anxiety when outside help comes in. It could be a specific phrase or cue that your loved one can recognize, helping them feel more comfortable even if the helper is unfamiliar.

The episode also touches on three key topics:

• How increasing daytime sleepiness may be an early sign of dementia.

• A new blood test that can diagnose and track Alzheimer’s disease.

• Four valuable suggestions for caregivers at any stage of the journey.

With humor, heart, and a dose of reality, Jeff Edwards offers caregivers practical tools and emotional validation while helping them maintain their own mental and physical health. Whether you're in the early stages of caregiving or in the thick of it, this episode is full of helpful tips and reassuring advice for anyone supporting a loved one through Alzheimer’s.

Navigating the insidious illness of Alzheimer’s is something nobody asks for. The disease sneaks up on you and your loved one, and it feels like you’ve been sucker-punched in the gut when you get the diagnosis from a doctor. So many things race through your mind: why us? What do we do? We worked so hard to get to this point in life. We just moved here after we both worked for 30 years, sold our house up North, and retired to Florida to enjoy our “golden years”. It’s not fair! Who’s going to take care of her/him? I don’t know a thing about this illness. She’s always done the cooking; I don’t even know how to boil water. He's always taken care of me and everything else like Finances. I don’t even drive! And it goes on and on. Facing this disease will bring you to your knees. Once you get over the initial shock (GUT PUNCHED), the questions and fears take hold. Where do we turn for help? Who do I call? What do I do? How do you take care of someone with Alzheimer's? Are there support groups? And questions like these just keep coming. I am a caregiver. I wasn’t before. Well, not this kind of caregiver. My wife was officially diagnosed in January of 2018. I had a sneaking suspicion that she might have something like this about 2 years earlier. So, when I brought it to my Neurologist, he sent us to a very nice Psychologist who specializes in testing patients to determine more accurately what is going on. It was a question-and-answer session, followed by a very detailed testing procedure that usually takes 3 or more hours. The patient has to complete the test comprising of questions, simple actions, and memory tests, then give them a couple of numbers or words then move on, going back to the numbers or words a short time later. 

So moving forward, I asked all the same questions as mentioned earlier. What are my options? So I “sucked it up”-Manned up so to speak. It's part of the deal for better or worse, right? So began my quest for information on support groups, doctors, anything I could get my hands on. It's been 6 years, and I am still looking for everything and anything that will help me crawl through this unchartered path to enlightenment. I was very fortunate to live in a city that has numerous resources to tap into. Most importantly, it's a place named after someone who suffered from Alzheimer’s. His wife provided the money to start the Alvin Dubin Center: The Dubin Center for short. Their mission is to achieve caregiver health, strength, and resilience by providing education, information, hope, and compassion. And boy do they. I leaned on them for everything I could find. Took all kinds of classes to learn what I needed to do to be the caregiver I have to be. Their caregiver class took about 6 weeks. The material we learned from, and the instructors, were top-notch. I still go back to the notes I took, and the books we used: both as refreshers and inspiration. Hopefully, no matter where you are listening to this, there will be a place like the Dubin Center. If not, don’t despair. The info is out there. That’s what this podcast is about. We’d like to share our resources, our experiences, our heartbreak, and our little victories. From time to time, we’d like to bring in Physicians, Nurses, Experts, and people like you and me, who are going through this disease with our loved ones who are willing to share their journey. The first thing that really stuck with me, and hopefully it will be with you. If you are a caregiver, you must first take care of yourself. Because this is not a sprint, but a marathon. And if you are run down, get sick, or worse.... Who’s going to take care of your spouse, mother, father, or child? Think about that for a few seconds. It’s you, the Caregiver. It’s me the Caregiver. That’s why we’re here. Gut Punched: Alzheimer’s & Caregivers! Thanks for joining us...now let's get going.