Gut Punched: EP 119 - You Don't Know What You Don't Know - “You Don't Know Nuttin'”

Sometimes the most important thing we can learn is that we don't know what we don't know. Or, as host Jeff Edwards puts it a little more simply: “You Don't Know Nuttin'.”

In Episode 119 of GutPunched: Alzheimer's and Caregivers, Jeff sits down with longtime friend Peggy Sealfon, a board-certified health coach, award-winning author, educator and entrepreneur who, in her late 70s, is still learning and currently pursuing her doctorate in Natural Medicine.

Their conversation explores some thought-provoking territory surrounding healthy aging, regenerative medicine, the mind-body connection and caregiver health. 

They also tackle an especially important question for families facing Alzheimer's and dementia: Is there room for hope?  But hope and hype aren't the same thing.

With miracle cures, anti-aging promises, and wellness claims seemingly everywhere, Jeff asks Peggy how caregivers can separate legitimate science and worthwhile possibilities from clever marketing. And for the caregiver who is so overwhelmed that taking care of themselves feels like just one more thing on an impossible to-do list, where do they even begin?

Plus, Dr. John Huffaker joins Jeff for another edition of What's New with Alzheimer's, answering this week's question: What is the blood-brain barrier, and why is it so important when it comes to medications used to treat Alzheimer's?

It's an episode about curiosity, questioning assumptions, taking care of the caregiver, and remaining open to possibilities, while remembering the GutPunched philosophy:

Hope Without Hype.

Because sometimes the first step toward learning something new is admitting...

You Don't Know What You Don't Know.
Or Maybe... You Don't Know Nuttin'.....

#GutPunchedPodcast #Alzheimers #Dementia #Caregiving #CaregiverSupport #CaregiverHealth #HealthyAging #BrainHealth #StressManagement #AlzheimersAwareness #DementiaCare #HopeWithoutHype

Available on Podcast Playground, Apple, Spotify, Pandora, iHeart, Podbean, YouTube, and GUTPUNCHED.COM.

Navigating the insidious illness of Alzheimer’s is something nobody asks for. The disease sneaks up on you and your loved one, and it feels like you’ve been sucker-punched in the gut when you get the diagnosis from a doctor. So many things race through your mind: why us? What do we do? We worked so hard to get to this point in life. We just moved here after we both worked for 30 years, sold our house up North, and retired to Florida to enjoy our “golden years”. It’s not fair! Who’s going to take care of her/him? I don’t know a thing about this illness. She’s always done the cooking; I don’t even know how to boil water. He's always taken care of me and everything else, like Finances. I don’t even drive! And it goes on and on. Facing this disease will bring you to your knees. Once you get over the initial shock (GUT PUNCHED), the questions and fears take hold. Where do we turn for help? Who do I call? What do I do? How do you take care of someone with Alzheimer's? Are there support groups? And questions like these keep coming. I am a caregiver. I wasn’t before. Well, not this kind of caregiver. My wife was officially diagnosed in January of 2018. I had a sneaking suspicion that she might have something like this about 2 years earlier. So, when I brought it to my Neurologist, he sent us to a very nice Psychologist who specializes in testing patients to determine more accurately what is going on. It was a question-and-answer session, followed by a very detailed testing procedure that usually takes three or more hours. The patient must complete the test, which comprises questions, simple actions, and memory tests.

Then give them a couple of numbers or words, and move on, returning to the numbers or words a short time later. So, moving forward, I asked the same questions mentioned earlier. What are my options? So I “sucked it up”-Manned up, so to speak. It's part of the deal for better or worse, right? So began my quest for information on support groups, doctors, and anything I could get my hands on. It's been 6 years, and I am still looking for anything that will help me crawl along this uncharted path to enlightenment. I was very fortunate to live in a city with numerous resources to draw on.

Most importantly, it's a place named after someone who suffered from Alzheimer’s. His wife provided the money to start the Alvin Dubin Center: The Dubin Center for short. Their mission is to achieve caregiver health, strength, and resilience by providing education, information, hope, and compassion. And boy do they. I leaned on them for everything I could find. Took all kinds of classes to learn what I needed to do to be the caregiver I have to be. Their caregiver class took about 6 weeks. The material we learned from and the instructors were top-notch. I still go back to the notes I took and the books we used, both as a refresher and for inspiration. Hopefully, wherever you are listening to this, there will be a place like the Dubin Center. If not, don’t despair. The info is out there. That’s what this podcast is about. We want to share our resources, our experiences, our heartbreak, and our little victories. From time to time, we’d like to bring in Physicians, Nurses, Experts, and people like you and me who are going through this disease with our loved ones, willing to share their journeys. The first thing that really stuck with me, and hopefully it will be with you. If you are a caregiver, you must first take care of yourself. Because this is not a sprint, but a marathon, and if you are run down, get sick, or worse.... Who’s going to take care of your spouse, mother, father, or child? Think about that for a few seconds. It’s you, the Caregiver. It’s me, the Caregiver. That’s why we’re here. Gut Punched: Alzheimer’s & Caregivers! Thanks for joining us...now let's get going.